Welcome to the fifth installment of our latest PatientsLikeMeOnCall podcast series, entitled “It’s Friday – Let’s Journal Club.” This week’s guest is Dr. Taha Kass-Hout, Deputy Director of the Division of Notifiable Diseases and Healthcare Information at the CDC. He came by PatientsLikeMe headquarters recently to discuss the BioSense project, an initiative launched following 9/11 and the subsequent Anthrax threats to create an integrated national public health surveillance system for early detection of potential bioterrorism-related illnesses.
This week’s interview is with PatientsLikeMe’s own Catherine Brownstein, PhD, MPH, who recently won a highly competitive award from the International Congress of Human Genetics (ICHG). One of our in-house Research Scientists, Dr. Brownstein captivated PatientsLikeMe headquarters last Friday with her Journal Club talk about what the ICHG award means as well as how the study of genetics can influence healthcare decisions.
PatientsLikeMeOnCall™ continues its weekly podcast series, “It’s Friday - Let’s Journal Club.” In this installment, PatientsLikeMe member Sarah Taylor stopped by the PatientsLikeMe office to talk about her experiences with using PatientsLikeMe and living with type 1 diabetes since the age of nine. Sarah also shares some helpful tips for newly diagnosed type 1 diabetes patients.
Interview with Kevin Dykstra Ph.D.:PatientsLikeMe’s Aaron Fleishman sat down with Dr. Kevin Dykstra Ph.D. to learn more about how his team is working to measure the clinical utility of treatments in a systematic, quantitative way. Listen in to hear what exactly that involves and why Dr. Dykstra feels PatientsLikeMe is a “treasure trove of information” that is “incredibly useful” for both patients and drug developers
Interview with David Hale, project manager of PillBox; Hosted by Aaron Fleishman. Aaron Fleishman sat down with Hale to learn more about Pillbox’s goal of creating a one-stop resource for identifying unknown pills as well as how the project aligns with the Open Government Initiative enacted by President Obama. Tune in below to hear how Hale and his team took drug labeling data from “open to actionable” by listening closely to affected communities.
How can we put patients back at the center of healthcare? What barriers do we need to break through so that patients like you can openly share your health information? Co-founder of PatientsLikeMe Ben Heywood answers these questions and more in the fourth and final episode of our “A Look Ahead” podcast series.
Interview with Co-Founder Jamie Heywood: Why does the healthcare industry need to shift from drug safety to patient safety? Co-Founder of PatientsLikeMe Jamie Heywood explains in this week’s edition of “A Look Ahead.” In this interview, Jamie explains the difference between drug safety and patient safety, why it is so important for healthcare to adapt more to patient safety and what this shift would mean for the future of healthcare.
Interview with Chief Marketing officer and Head of Business Development David Williams: Why is it so important for patients and industry to work together? That’s exactly what I asked our Chief Marketing Officer and Head of Business Development David Williams in this week’s installment of “A Look Ahead.” We sat down to discuss the benefits of aligning patient and industry interests as well as the role that social media can play.
Interview R&D Director Paul Wicks: Our Director of Research and Development Paul Wicks PhD stopped by PatientsLikeMeOnCall™ to discuss the future of PatientsLikeMe research, some of the challenges we face and the powerful influence patients like you can have when you share your health data.
Friday March 18th, OnCall will be releasing its first series of 2011 called “A Look Ahead.” This series is going to look at some of the major shifts we see ahead for patients, patient care and patient/industry collaboration. We will be talking to co-founders of PatientsLikeMe Ben and Jamie Heywood as well as Head of business development and marketing at PatientsLikeMe David Williams and our head of research and development Paul Wicks. To kick this series off, we have a quick clip for you from my discussion with David Williams. In this episode David and I sat down to talk about the importance of patients and industry working together and David also gives us some examples of how patients and industry can work together.
Interview with PatientsLikeMe leadership team: We recently sat down with our executive team here at PatientsLikeMe in our first-ever roundtable-format podcast. In this PatientsLikeMeOnCall™ interview, we ask Co-founders Ben and Jamie Heywood, Chief Marketing Officer David S. Williams III, and R&D Director Paul Wicks Ph.D. to discuss the history and future of PatientsLikeMe.
Interview with Parkinson's community member Cher441: In the PD quilt series finale, I sat down with Cher441 who currently has the PatientsLikeMe Parkinson's quilt and is using the quilt for raising awareness about Parkinson’s. Cher441 is involved with many support groups including, The Courageous Steps Group, The Parkinson’s Disease Bootcamp group, The Ohio Parkinson Foundation Northeast Region group, as well as several other local awareness groups near her. Recently, The Courageous Steps and Parkinson’s Disease Bootcamp groups hosted events where Cher441 brought the quilt for everyone to see.
Interview with Parkinson's Community member Aunti J: In episode 4 of the PatientVoice we learn about Aunti J and how she has been living with inherited PD for most of her adult life. While she has plenty of first-hand experiences with PD, she has also been a caregiver for someone with the disease – her father. A wealth of knowledge with a big heart, Aunti J makes it a point to share as much as she can about what she has learned. When her father passed away, she came online looking for support and an opportunity to share with others. The PD community is thrilled that she found us! Hosted By Aaron Fleishman.
Interview with Parkinson's Community member VigWig: A few years back VigWig underwent surgery due to his Parkinson’s Disease. Word spread throughout the PatientsLikeMe Parkinson’s Disease community and to show the communities support for VigWig, the community decided to send VigWig the quilt so that when he returned to his room from surgery the quilt would be there waiting for him. A clear example of a community rallying together to become a family, here is VigWig’s story.
Interview with Parkinson's Community member BrownCat87: Wrap yourself up with the PatientsLikeMe Parkinson’s Disease quilt and Episode 2 of “The Patient Voice” podcast series. In this episode, PatientsLikeMe Parkinson's Disease community member BrownCat87 shares about everything from her experiences with depression to how DBS has helped her manage her condition to how this quilt made her feel like she was a part of something special. Listen in!
Interview with Parkinson's Community member PokieToo:PatientsLikeMeOnCall(TM) presents the series premier of the Patient Voice. A few years ago, members of the PatientsLikeMe Parkinson's Disease community came together online and decided to create the quilt as a fun activity to get them through the winter season. Initially a fun passion project, the quilt has become an expression of the power of community. In the series premier we sit down and talk with the creator of the quilt Pokie Too. Pokie talks about what inspired her to create this quilt and what the quilt means to her.
Interview with Parkinson's member BrownCat87: A few years ago, members of the PatientsLikeMe Parkinson's Disease community came together online and decided to create the quilt as a fun activity to get them through the winter season. Each patch of the quilt is designed by a different member of the community and demonstrates, in a very personal way, something about the individual and her/his experience living with Parkinson’s Disease. Initially a fun passion project, the quilt has become an expression of the power of community. Little did the quilters know how much their project would end up impacting their lives, the lives of other members, and, even beyond that, the lives of people in the Parkinson’s disease community as a whole. To get you geared up for this five part series, here is a quick clip from our premiere interview with PD community member, Pokietoo. The premiere launches this Thursday (October 7th) at 2pm EST, and the other interviews will run every Thursday following. Hosted by Aaron Fleishman
Interview with Chief Marketing Officer David Williams:In part two of our series, “The Value of Sharing Health Information,” we sit down with Chief Marketing Officer at PatientsLikeMe David S. Williams III. Recently featured in the BIO IT World magazine cover story entitled “A Social Approach to Patient Recruitment,” Dave talks about how openness and sharing play an integral role in aligning patients and industry needs. Hosted by Aaron Fleishman.
Interview with R&D Director at PatientsLikeMe Paul Wicks: In this podcast, Research Director Paul Wicks talks about the results of a PatientsLikeMe user survey recently published in the Journal of Medical Internet Research (JMIR). Entitled “Sharing Health Data for Better Outcomes on PatientsLikeMe,” the paper reveals the benefits many patients have reported from using the site. Hosted by Aaron Fleishman
Interview with Research Scientist Mike Massagli: Mike Masagli is on call, to discuss how the research and development team at PatientsLikeMe measures the quality of life of it's members through the quality of life survey. Hosted by Aaron Fleishman.